3,561,596 members
12,429,752 petition signatures
$19,571,785,510 diverted from Big Pharma
Lyme Cover Up Rages On
What have you heard about tickborne Lyme for the last 30 years? That it’s rare, scary, acute, treatable… The government warns about its spread and implores people to go to a doctor upon seeing the telltale bulls-eye rash. What happens when they actually do?
Many have researched the controversial beginnings of Lyme disease, but this article focuses on what happens to victims when they contract it and what they can do now.
Under Our Skin is a documentary that lends a voice to the many who in fact suffer from chronic Lyme and are victims of a greater abomination.
Why do conventional doctors tell them it’s in their head? Why won’t they quickly test for it? Treat it? Acknowledge it? Why do medical boards shut down doctors who can treat and cure Lyme?
Lyme’s Disease is NOT RARE – Bigger Than AIDS
In the late 70s, a Lyme, Connecticut mom reported a mysterious new disease sweeping the town, leaving its people with debilitating, chronic symptoms. In 1981, Dr. Willy Burgdorfer discovered the Lyme bacteria, called Borrelia burgdorferi.
The bacteria spirochetes closely resemble syphilis in their make up. While a carrier tick is feeding, its backwash enters the host and transmits Lyme. The corkscrew spirochetes wreak havoc, drilling into any healthy cells and tissue. They create painful, crippling neurological and immunological damage.
In the beginning, doctors only knew that it resembled syphilis but remained unaware of its wide spread, how to proceed, and the political, medical clash that awaited them.
In recent years, the CDC has reported over 35,000 new Lyme cases annually but admit that since it is so overlooked the actual number may be 12 times higher, up to 420,000 cases each year.
Think of how much more likely it is to contract Lyme than the media-touted West Nile virus which is only reported at around 1,300 cases annually. If the actual number of Lyme cases is even just a modest amount above the CDC’s 35,000, then Lyme is far more prevalent than AIDS, reported at 39,000 cases annually.
Since 1982, the number of cases continues to climb and spike prompting media reports and health officials to label it epidemic as early as 1989. Reported cases have tripled since 1992. Every summer we hear the same cautionary reports. Yet doctors constantly tell their patients “You don’t have Lyme” or “Lyme only happens in such-and-such state, not here.”
Lyme is a national health crisis in every state and has traveled the globe!
Since this infectious disease is viewed with eyes that won’t see and hands that won’t treat, the miniscule 35,000 reported cases are unquestionably a mere fraction of people sick with Lyme.
Patients often look normal and are told they have M.S., Lou Gehrig’s, psychological disorders, Parkinson’s, ADHD but not Lyme. Therefore, many walk around with Lyme and have no clue why they are so ill, why treatments don’t work and are left to wonder. Many are left to die.
Without Early Eradication Lyme is Chronic, Expensive, Does Not Leave Easily
Lyme patients often state that they’ve seen an average of 30 doctors, spent over $100,000 in medical care and waited up to 15 years for a Lyme diagnosis. Why??
Lyme disease antibodies can be detected early with a blood test. If caught early it can be treated with an inexpensive bottle of antibiotics. But that is rarely the case. Patients are told it’s not Lyme, it won’t be tested for, it’s something else and so the struggle begins…
When the patient remains ill, why, it couldn’t possibly be chronic Lyme because doctors view it as acute and are not allowed to believe chronic Lyme exists. If “acute” Lyme isn’t cured with two weeks of antibiotics, which it won’t be if the bacteria has taken hold due to waiting, then the patient is told it must be something else and years of sickness, pain, and ineffective treatments ensue.
Talk to someone who’s been through this battle. They will most likely tell you they were dismissed, referred to psychiatrists and multiple specialists. Lyme can attack any area of the body and manifest endless symptoms.
Lyme patients have seen specialists for chronic pain, arthritis, Chrohn’s, iritis, organ failure, brain and neurological problems, dyslexia, insomnia… you name it. All for one disease that could have been treated early. But no one will believe them and after seeing so many specialists they are often labeled crazy, hypochondriacs, attention loving, and depressed.
The spirochetes can cleverly avoid the antibiotics and hide from the immune system. It’s frightening to think that specialists often prescribe immune suppressive drugs – the most counterproductive plan for Lyme patients.
The CDC now hints at chronic Lyme with sarcastic quote marks and insists that it be called Post-Treatment Lyme Disease Syndrome (PTLDS). They openly admit that the first round of conventional treatment might not bring a cure and that the patient is in for a long ride of pain and sometimes years of antibiotics, the only recognized conventional treatment.
They LIE and state that there is no credible scientific evidence that PTLDS is caused by persistent infection, that it must be residual damage, that the Lyme is gone. They also make a big point in telling people to avoid their own research on the internet, not to believe the inaccurate information out there, just keep seeing the doctor who left them untreated for so long.
The CDC says before PTLDS treatment takes place, confirm the diagnosis – fat chance that will happen.
So how did that fiasco begin?
Cont. – Why Doctors Can’t Acknowledge, Treat, or Cure Lyme
~Health Freedoms
Sources:
Under Our Skin (2008), available on Netflix
http://www.cdc.gov/lyme/postLDS/index.html
http://www.cdc.gov/lyme/
http://www.huffingtonpost.com/leo-galland-md/lyme-disease-symptoms_b_876096.html
http://www.lymenet.org/SupportGroups/UnitedStates/
http://www.lymecommunity.com/forums/ubbthreads.php?ubb=showflat&Number=2711
http://www.cbsnews.com/2300-204_162-10007902.html?tag=page
This series is dedicated to Lyme patients everywhere.
No related posts.
Related posts brought to you by Yet Another Related Posts Plugin.
[...] http://healthfreedoms.org/2011/07/01/lyme-cover-up-rages-on/ [...]
I cannot thank you enough for bringing this to public attention. We have been beating our heads against a brick wall for so long, trying so hard just to be heard. Just to have someone listen and acknowledge this despicable medical travesty. The Lyme Crymes. A million thanks to you and to Open Eye Pictures for Under Our Skin. Did you know that WGBH Boston pulled the film from 100 stations, refusing to show it? Did you know that the IDSA and Dr. Eugene Shapiro of Yale University have vehemently objected to to PBS for showing Under Our Skin? They do not want this information to get to the public, for their Lyme Crymes will be exposed. We need more exposure. Please contact me.
After testifying on behalf of patients at the 2009 IDSA hearing as part of Attorney General Blumenthal’s investigation, I really believed that the TRUTH would prevail, but unfortunately, it did not.
http://www.leaparizona.com/reviewpanelhearing.htm
You have performed a great service in sharing our plight with the world. Thank you again and may God Bless you for your efforts!
Gratefully yours,
Tina J. Garcia
Founder
Lyme Education Awareness Program
L.E.A.P. Arizona
http://www.leapariozna.com
P.O. Box 2654
Mesa, Arizona 85214-2654
480-219-6869 Phone
480-830-2788 Fax
Western allopathic medicine can test for millions of diseases and complications and the scope of diagnostics is truly astonishing. However, when a symptom, syndrome or anomaly presents itself that does not fit their experience or capabilities they totally cop out. This is because they mistakenly believe that they have the best that can be offered medically.
This is a myth that the pharmaceutical industry has perpetuated. This system does not allow innovation or anything that exists beyond its paradigm. Therefore if they are baffled by how to treat the issue in question, and since the buck stops with their health system, they call it psychological or brush it off.
One can only conclude that modern western medicine is stupid for all of its smarts.
Lyme falls in the category of stuff that they don’t have an answer for, and if they don’t…’just bug off’ and every thing else offered is a bunch of hooey.
My heart goes out to all of you who suffer and are not taken seriously. Just remember that there is always an answer even if the bafoons in power ain’t got a clue.
The Lyme Disease Epidemic: CDC Tuskegee Experiment, Phase II
Front-page of July 2011, Public Health Alert:
http://www.publichealthalert.org/Articles/miscellaneous/tuskeegee%202.pdf
‘As a result of the use of treatment guidelines to deny treatment, America’s most egregious example of medical malpractice through treatment-denial is now an everyday reality, conducted on a grand scale, and run with the complicity of the CDC and other public agencies, which are exploiting the public instead of protecting them. I have referred to this as the institutionalization of the Tuskegee Experiment.’
Link to my presentation (“The Subversion of Modern Medicine Through the Proliferation of Treatment Guidelines”) at the 2011 Physician’s Round Table, describing the manner in which treatment guidelines are subverting the medical system in the United States:
https://docs.google.com/viewer?a=v&pid=explorer&chrome=true&srcid=0BwWpe9s21nQ4ZWQ3NWNiNDMtYTVhZC00NDdlLTliM2ItZTBkZGM4ODllMDIx&hl=en_US&authkey=CNWO8qMO
Eight(8)Monosaccharides “thought to be necessary:”
Has anyone suffering from Lyme Disease ever tried adding Glyconutrient Based Food Supplements to their diet? I have no personal experience with Lyme Disease. However, the addition of these 8 Necessary Sugars to my diet has apparently “enabled” my 66 year old body to make “itself” quite healthy since beginning such 15 Oct., 2003. Atleast, that’s what is said to me after each annual Check Up.
Though my web site is listed above, you do not have to go there. There are over 40,000 Pier Reviewed Articles, Publications, Books, Reports, Tests, Double Blind Studies, etc. available all over the world/internet. Read Harper’s Illustrated Biochemistry, 27th Edition (and later) Med-School text book, Chapter 46-Glycoproteins, by R.K.Murray, MD,PhD.
I had an incident in an ER over the Christmas holiday. I have leukemia and am prone to opportunistic infections. The main one tends to be shingles (chicken pox herpes zoster virus) which is common. Mine presents in the nerve dermatome down my right leg from my hip. I presented with upper medial calf swelling which was already 12 progressing, so my doctor ordered some tests to rule out a blood clot in my right leg when I arrived at the ER. Instead of the ER physician doing an ultrasound and an inexpensive d-dimer test, he told me I must have forgotten I fell, did an x-ray and ran a Lymes test. I am only 54. I was back in the ER the next night unable to walk due to the increase in fluid now building up into my knee. NO I WAS NOT PRESENTING WITH ANY LYME SYMPTOMS. When I returned he told me I had LYME, but in REALITY, I was having a FALSE POSITIVE LYME testing due to the HERPETIC infection, which many people are not told. I was sent on a wild goose chase with three aspirations of my right knee, attempts to force antibiotics that I am known to be allergic to, when IN FACT, I had a BLOOD CLOT IN MY LEG due to inflammation from the infection and other autoimmune inflammatory presentment I have with this type of leukemia. If I would have taken the antibiotics, it would have worsened the viral infection. Lyme testing is also FALSE POSITIVE when you have a POSITIVE Herpes Simplex titer as well and it states it right on the test results. Needless to say, I was retested after the viral infection had calmed down and my LYME WAS NEGATIVE.
In addition, persons infected with SV-40 simian virus, a vaccine contaminant, http://www.ccid.org, also test FALSE POSITIVE for Lyme!!! So, those who have never had a tick bite and never presented with a rash, may have this contaminant cross reacting!
Samento by NUTRAMEDIX also CURES LYME! Look at the research. I also know many people who took Samento capsules and are now LYME NEGATIVE, when they actually HAD a tick bite and presented with the classic bullseye rash and are symptom FREE!
Oh and related to my blood clot. I was told I had to take heparin and coumadin which are wildly toxic and which I am intolerable to. My hematologist told me I would have the blood clot for years. I took VIRASTOP (proteolytic enzymes) and in three months my blood clot was GONE and I have no post thrombotic pain!
So, what you don’t know about lab testing could kill you! It is fallable and they are wrong many times over!
LOIS KUDOS! Lois, you’ve got a lot of guts to tell it like it is from a CHRONIC LYME/CO-INFECTION patient’s perspective.
You were DEAD ON in your series of 4 articles! I kept saying; I could have written what you did with the flair of JUSTICE for us in the lyme/co-infection community. You were reading my mind over and over!
I was bitten 42.5 years ago by a tick that came off my folk’s CUT CHRISTIMAS TREE. I was misdiagnosed for 34.5 YEARS by 40-50 drs. UNACCEPTABLE.
They never asked me if I’d seen a tick attached or engorged on me. They NEVER asked if I’d had a bulls-eye rash or any type of rash. The medical drs. failed me horribly.
I went to a meeting NOT advertised as a LYME support group meeting for FIBROMYALGIA PAIN, CHRONIC FATIGUE SYNDROME, PARKINSON’S, ALZHEIEMR’S/DEMENIA, BELL’S PULSY meeting.
300 other diseases MIMICK LYME disease; no wonder it’s so hard and timeconsuming to get a CORRECT diagnosis.
I learned the symptoms that night were ALL what I’d been suffering from for almost 35 years.
I heard that night about a western blot igm/igg blood test and could be sent to IGENEX LYME DIAGNOSTIC LAB,CALIF. So I had my blood drawn and sent off NOT expecting a LYME diagnosis.
GOLLY GEE…IT WAS LYME! My primary dr. of 27 years was as shocked as me; I was his 1st lyme patient!
Iowa didn’t have any full-time CHRONIC LYME DRS. practicing ILADS lyme guidelines; more than 4 wks. of antibiotics, using supplements, or other alternative therapies; so I ended up going to Minn.
NOPE, NOT MAYO CLINIC who has failed our lyme/co-infection community horribly.
After Igenex lab tests showed I was positive on many of the 10 protein bands, our local clinic took my blood and had it sent to Mayo Clinic. It came back NEGATIVE.
The reason why: their equipment is NOT as sophisticated like IGENEX IN CALIF. Mayo tested only 2 of 10 and 5 of 10 protein bands. Igenex TESTED ALL 10 PROTEIN BANDS!
Also, our lyme disease and tick-borne bills have been in congress for 11-12 years now and we CAN’T even get them on the “agenda” to be discussed/cussed!
REASON: The healthsub-committee chair NJ FRANK PALLONE was paid over $505,000 by the “medical community” lobbyist NOT to put our bills on their agendas! That happened at least 2; possibly 3 years in a row!
So EACH year we have to start from scratch introducing our bills and getting CO-SPONSORS for the house and senate bills!
Lois, what a pleasant and wonderful SURPRISE to our lyme/co-infection community. We’re ALL so very proud of you and your frankness in telling OUR stories. KEEP UP THE GOOD WORK! We LOVE this type of ACCURATE reporting.
God bless you Lois and the newspaper for running your series online, etc!
Bettyg, Iowa lyme activist
http://www.mdjunction.com lyme board group leader
home of over 800 OTHER health/symptom boards; check it out!
Thank you for this excellent article getting to the truth of the situation that affects thousands of people the World over.
Last year the Institute of Medicine held a workshop on the Science of Lyme Disease and other tick borne illnesses it is still available to watch at http://www.tvworldwide.com/events/iom/101011/ It is abundantly clear watching this that all tick borne diseases that we know of are difficult to test for and have the capacity for chronic illness singularly but even more so when patients are co infected with multiple strains of Borrrelia and multiple organisms.
In their final report the IOM says ‘Significant Gaps Remain In Understanding of Lyme Disease.’ Far to early then to be denying patients diagnosis and adequate treatment.
I think Ken Leigner MD says it all in his letter to the IOM he refers to what is happening to Tuskegee x 10000 http://www.ilads.org/news/lyme_press_releases/iompanel_lyme.html
It is time everybody stepped up and took this all seriously not just our Health Authorities, doctors but media outlets too.
We have been thankful that the two doctors we’ve had to see in NJ and later in VA both prescribed proper antibiotics the moment they saw the tell-tale rash (first on our daughter in NJ, and more recently on our son in VA). They didn’t bother with the test that can sometimes show a false negative (indicating you don’t have it when you do). To date, neither of our children have shown any other symptoms.
This also shows why the CDC numbers are low – these two cases were simply treated and not “tested”, so the CDC has no idea that two cases of Lyme’s were successfully treated, since they weren’t “officially” diagnosed.
http://www.youtube.com/watch?feature=player_detailpage&v=-NPCKBZhlCA
[...] question of its transmissible qualities were also questioned in the documentary Under Our Skin. Many who have been diagnosed with Alzheimer’s, especially younger patients, have turned out [...]
What I suggest we all do now is get educated about what’s going on with the epidemic of Lyme disease and co-infections, and then stand up in medical offices, give them Lyme brochures – can be ordered for free from http://www.lymediseaseassociation.org, and educate the staff too. Info at http://www.lymedisease.org, http://www.lymenet.org, http://www.lymediseaseassociation.org, http://www.IGeneX.org, http://www.ILADS.org, http://www.underourskin.org, http://www.canlyme.com and more! Tell every medical entity you go see, including dental too. We do not have to be silent, we do not have to take it, we can speak up and educate about what these infections are, how fast they’re spreading around the world, about the state of testing (not 100% accurate yet), and about treatments that are being tried to alleviate the suffering and hopefully, turn the infections around.
Karma will see to it that those who write the treatment guidelines and pad the pockets of the corrupt FDA/CDC officials contract the disease themselves.
I wonder if they will follow their own treatment guidelines?